#chronicillness

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Gastroscopy Surgery is performed for Chronic Nausea & Vomiting at Kamat Hospital!

#nausea #vomit #vomiting #chronicillness #pregnancy #pregnancylife #pregnancyblog #pregnancyglow #pregnancyloss #pregnancybelly #pregnancytest #pregnancyyoga #pregnancycravings #pregnancyjourney #pregnancyfitness #pregnancydiet #pregnancy #pregnant #pregnantbelly #pregnantmom #pregnantmum #pregnantproblems #pregnantyoga #pregnantlife #pregnantandfit #pregnantblogger #pregnantdays #mumbai #india #kamathospital

Gastroscopy Surgery is performed for Chronic Nausea & Vomiting at Kamat Hospital! #nausea #vomit #vomiting #chronicillness #pregnancy #pregnancylife #pregnancyblog #pregnancyglow #pregnancyloss #pregnancybelly #pregnancytest #pregnancyyoga #pregnancycravings #pregnancyjourney #pregnancyfitness #pregnancydiet #pregnancy #pregnant #pregnantbelly #pregnantmom #pregnantmum #pregnantproblems #pregnantyoga #pregnantlife #pregnantandfit #pregnantblogger #pregnantdays #mumbai #india #kamathospital - 3 minutes ago

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#fibromyalgie #fibro #fibromyalgia #fibropain #fibropainday #chronicillness #fibrosucks #mylife #pain #hurts #soul #sickofbeingsick #chronicpain #life #care #selflove #exhausted #tired #painful #spoonie #fibrowarrior #fibromyalgiaawareness #fibromyalgiawarrior #fibrofog #fibrofighter #strong #sleep #tired #purple #purpleribbon

#fibromyalgie #fibro #fibromyalgia #fibropain #fibropainday #chronicillness #fibrosucks #mylife #pain #hurts #soul #sickofbeingsick #chronicpain #life #care #selflove #exhausted #tired #painful #spoonie #fibrowarrior #fibromyalgiaawareness #fibromyalgiawarrior #fibrofog #fibrofighter #strong #sleep #tired #purple #purpleribbon - 6 minutes ago

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Day 4of #EDS #awareness in my opinion the fatigue is one of the worst symptoms. Sometimes I’m so #exhausted I have to go to sleep after getting to the supermarket or I don’t have the energy to start a conversation. #ehlersdanlos #ehlersdanlossyndrome #hypermobility #raredisease #chronicdisease #chronicillness #chronicpain #chronicwarrior #spoonie #spoonielife #connectivetissue #chronicfatigue #fatigue #edsproblems #rarediseaseday #raiseawareness #knowledgeishope #educationisknowledge

Day 4of #EDS #awareness in my opinion the fatigue is one of the worst symptoms. Sometimes I’m so #exhausted I have to go to sleep after getting to the supermarket or I don’t have the energy to start a conversation. #ehlersdanlos #ehlersdanlossyndrome #hypermobility #raredisease #chronicdisease #chronicillness #chronicpain #chronicwarrior #spoonie #spoonielife #connectivetissue #chronicfatigue #fatigue #edsproblems #rarediseaseday #raiseawareness #knowledgeishope #educationisknowledge - 9 minutes ago

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The power of mother daughter love. This women has been through hell & back with me me. She has watched her child suffer & been there every single step of the way. I honor my mother & the amazing, unbelievably strong,  beautiful  soul she has loved me with  me unconditionally. She would do anything to take this disease away from me but, on the days I shine she knows that light shines through darkness. ✨ 
1 year ago & we continue to never let go. ❤️ #abeautifulgift #divine #motherdaughter #bond #connection #neverletgo #thecomebackstory #thegoodfight #unconditionallove #healing #nevergiveup #embrace #love #familyovereverything #famila #inspire #mannas #italian #loveandlight #goodenergy #health #chronicillness #positivevibes #godisgood #blessed #heal

The power of mother daughter love. This women has been through hell & back with me me. She has watched her child suffer & been there every single step of the way. I honor my mother & the amazing, unbelievably strong, beautiful soul she has loved me with me unconditionally. She would do anything to take this disease away from me but, on the days I shine she knows that light shines through darkness. 1 year ago & we continue to never let go. #abeautifulgift #divine #motherdaughter #bond #connection #neverletgo #thecomebackstory #thegoodfight #unconditionallove #healing #nevergiveup #embrace #love #familyovereverything #famila #inspire #mannas #italian #loveandlight #goodenergy #health #chronicillness #positivevibes #godisgood #blessed #heal - 9 minutes ago

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Walked both boys tonight with relative ease. Tools to help are slowly coming together and providing me what I need to be able to help myself. Also, can we appreciate that I can wear heels again? I have a shoe problem and have slowly purchased less and gotten rid of more because my leg muscles can’t handle heels. It’s probably a combination of poor balance and muscle coordination (thanks ataxia!) so maybe these are just my cold weather boots, but I felt fabulous! If people are going to look at me, I might as well give them something interesting to see. #copingwithbehcets #chronicnausea #chronicillness #autonomicneuropathy #heels #wheels #heelsandwheels #positivity #positivevibes #behcets #behcetswarrior

Walked both boys tonight with relative ease. Tools to help are slowly coming together and providing me what I need to be able to help myself. Also, can we appreciate that I can wear heels again? I have a shoe problem and have slowly purchased less and gotten rid of more because my leg muscles can’t handle heels. It’s probably a combination of poor balance and muscle coordination (thanks ataxia!) so maybe these are just my cold weather boots, but I felt fabulous! If people are going to look at me, I might as well give them something interesting to see. #copingwithbehcets #chronicnausea #chronicillness #autonomicneuropathy #heels #wheels #heelsandwheels #positivity #positivevibes #behcets #behcetswarrior - 9 minutes ago

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#fibromyalgie #fibro #fibromyalgia #fibropain #fibropainday #chronicillness #fibrosucks #mylife #pain #hurts #soul #sickofbeingsick #chronicpain #life #care #selflove #exhausted #tired #painful #spoonie #fibrowarrior #fibromyalgiaawareness #fibromyalgiawarrior #fibrofog #fibrofighter #strong #sleep #tired #purple #purpleribbon

#fibromyalgie #fibro #fibromyalgia #fibropain #fibropainday #chronicillness #fibrosucks #mylife #pain #hurts #soul #sickofbeingsick #chronicpain #life #care #selflove #exhausted #tired #painful #spoonie #fibrowarrior #fibromyalgiaawareness #fibromyalgiawarrior #fibrofog #fibrofighter #strong #sleep #tired #purple #purpleribbon - 11 minutes ago

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spacecase. space... cace. 💚🖤💜 I’m working on some really great content for this page. Let’s end the stigma. Ignorance should be given up for compassion!
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#spacecase #spacecace #budtenderssociety #budtenderlife @captainjacks420 #cannabiscommunity #420women #frolife #smokeweedeveryday #fightthestigma #chronicillness #chronicpain #medicatedaily #shineonyoucrazydiamond #instaweed #instadab #sativa #indica #curlygirlswag

spacecase. space... cace. 🖤 I’m working on some really great content for this page. Let’s end the stigma. Ignorance should be given up for compassion! . . . . #spacecase #spacecace #budtenderssociety #budtenderlife @captainjacks420 #cannabiscommunity #420women #frolife #smokeweedeveryday #fightthestigma #chronicillness #chronicpain #medicatedaily #shineonyoucrazydiamond #instaweed #instadab #sativa #indica #curlygirlswag - 12 minutes ago

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Fy fan vilken dag, och så har den bara precis börjat.. akupunktur står på schemat, sen en sväng på stan och fixa det sista inför Indien 😆 #chronicillness#invisibleillness#fibromyalgia#endometriosis#fatigue#painsomnia#chronicpain#fuckendo#fuckfibro#nevergiveup#akf#fightforacure#fightlikeagirl#alwayskeepfighting

Fy fan vilken dag, och så har den bara precis börjat.. akupunktur står på schemat, sen en sväng på stan och fixa det sista inför Indien #chronicillness #invisibleillness #fibromyalgia #endometriosis #fatigue #painsomnia #chronicpain #fuckendo #fuckfibro #nevergiveup #akf #fightforacure #fightlikeagirl #alwayskeepfighting - 12 minutes ago

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This is my ‘It’s my last night in Hawaii and I can finally breathe’ look. Never in my whole 19 or whatever years of being diabetic have I been so open wearing my insulin pump than I have in the last few weeks since I started using it again. I literally always did everything I could to hide my pump and hide my diabetes. I’m no longer trying to do that, and I think it’s partly because I’ve been inspired by so many people on Instagram who rock their disease and their T1D gear! It feels so good to let my guard down and own the fact that I’m connected to a machine which happens to be saving my life. Who gives a f*^% what anyone thinks 🤙🏻

This is my ‘It’s my last night in Hawaii and I can finally breathe’ look. Never in my whole 19 or whatever years of being diabetic have I been so open wearing my insulin pump than I have in the last few weeks since I started using it again. I literally always did everything I could to hide my pump and hide my diabetes. I’m no longer trying to do that, and I think it’s partly because I’ve been inspired by so many people on Instagram who rock their disease and their T1D gear! It feels so good to let my guard down and own the fact that I’m connected to a machine which happens to be saving my life. Who gives a f*^% what anyone thinks 🤙🏻 - 13 minutes ago

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Feel like this vulture is sitting on my shoulder, pecking at me intermittently to see if I'm done.  I had an Aclasta infusion yesterday to try and help my bones, and oh my!  They said 1 in 4 gets bad pain, nausea and flu like symptoms after it, so naturally, the odds are ever in my favour, and it's much, much worse than I imagined!  Here's hoping it works really well to make this all worth while!
#aclastadisasta #aclasta #osteoarthritis  #painpainpain #vulture #chronicillness #chronicpain  #spoonieproblems

Feel like this vulture is sitting on my shoulder, pecking at me intermittently to see if I'm done. I had an Aclasta infusion yesterday to try and help my bones, and oh my! They said 1 in 4 gets bad pain, nausea and flu like symptoms after it, so naturally, the odds are ever in my favour, and it's much, much worse than I imagined! Here's hoping it works really well to make this all worth while! #aclastadisasta #aclasta #osteoarthritis #painpainpain #vulture #chronicillness #chronicpain #spoonieproblems - 13 minutes ago

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😱😢💊☕😷💻💊☕🌞💤🍪
#muslimah #muslim #allah #quotes #hayat #life #instagood #instaquotes #lifequotes #chronicpain #chronicillness #elhamdülillah #alhamdulillah  #instalove  #friends #aşk #love #fibromyalgia #fibro #fibromyalgi #fibroflare #pain #ağrı #kronikhastalık

🌞 #muslimah #muslim #allah #quotes #hayat #life #instagood #instaquotes #lifequotes #chronicpain #chronicillness #elhamdülillah #alhamdulillah #instalove #friends #aşk #love #fibromyalgia #fibro #fibromyalgi #fibroflare #pain #ağrı #kronikhastalık - 13 minutes ago

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Goodnight. 
Today I wish I had found someone to just hold me. Even though I cancelled my massage because I didn’t want to be touched. Pain creates so many thoughts in your mind but I promise if you have a full mind that you’re learning something about yourself. 
#highpainday #ehlersdanlossyndrome #thistooshallpass #invisibleillness #chronicillness #goodnight

Goodnight. Today I wish I had found someone to just hold me. Even though I cancelled my massage because I didn’t want to be touched. Pain creates so many thoughts in your mind but I promise if you have a full mind that you’re learning something about yourself. #highpainday #ehlersdanlossyndrome #thistooshallpass #invisibleillness #chronicillness #goodnight - 14 minutes ago

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30 Days Of Gratitude Day 20 : Who
I'm incredibly lucky to have a great support work of family and friends that I am incredibly grateful for infact there are far too many to mention. At the moment though I am most grateful for my J.T he came into my life when I'd give up on my happy ever after and the thought of finding someone that would accept me for who I am chronic illness and all. 
He is not only my hand to hold; he's there through the good days and the bad, he's my shoulder to cry on, my sounding board when I need to rant about anything and everything, can always make me smile on my bad days and is never phased by them. He's my light in the dark and is always there with open arms when I need a hug. I'm incredibly grateful to him for always being by my side (which is no easy task) and for seeing me despite it all I can't think of anyone better to share my wee corner of the world with. 💜 Jen x

#lowspoonwarning #takeabreak #rest #recharge #metime #takecontrolofyourlife #powerofpositivity #maketodaymarvellous #chronicallypositive #lovethelifeyoulive #fibromyalgia #fibrostrong #fibrowarrior #fibromitesunite #bordersfibrostrong #standstrong #dontgiveup #chronicillness #chronicfatigue #chronicallystrong #30daysofgratitude

30 Days Of Gratitude Day 20 : Who I'm incredibly lucky to have a great support work of family and friends that I am incredibly grateful for infact there are far too many to mention. At the moment though I am most grateful for my J.T he came into my life when I'd give up on my happy ever after and the thought of finding someone that would accept me for who I am chronic illness and all. He is not only my hand to hold; he's there through the good days and the bad, he's my shoulder to cry on, my sounding board when I need to rant about anything and everything, can always make me smile on my bad days and is never phased by them. He's my light in the dark and is always there with open arms when I need a hug. I'm incredibly grateful to him for always being by my side (which is no easy task) and for seeing me despite it all I can't think of anyone better to share my wee corner of the world with. Jen x #lowspoonwarning #takeabreak #rest #recharge #metime #takecontrolofyourlife #powerofpositivity #maketodaymarvellous #chronicallypositive #lovethelifeyoulive #fibromyalgia #fibrostrong #fibrowarrior #fibromitesunite #bordersfibrostrong #standstrong #dontgiveup #chronicillness #chronicfatigue #chronicallystrong #30daysofgratitude - 20 minutes ago

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#awaernessisbasic #postproduction  #lupuslife #shortfilm to #raiseawareness . #tbt So stay tuned.  #excited #thewolfieproject ...hoping to create #magic #lupusawareness  #lupusdisease #lupuswarrior💜 #lupusisreal  #figthers #chronicpain #chronicillness #realheros , #זאבת #לופוס #העלאתמודעות #הזאבון #מודעות  #מודעותזהבסיסי  #שלישיפעמייםכיטוב  #כאבכרוני #lupusIsrael #tbt #pod  #goals #התחלנו

#awaernessisbasic #postproduction #lupuslife #shortfilm to #raiseawareness . #tbt So stay tuned. #excited #thewolfieproject ...hoping to create #magic #lupusawareness #lupusdisease #lupuswarrior #lupusisreal #figthers #chronicpain #chronicillness #realheros , #זאבת #לופוס #העלאתמודעות #הזאבון #מודעות #מודעותזהבסיסי #שלישיפעמייםכיטוב #כאבכרוני #lupusIsrael #tbt #pod #goals #התחלנו - 20 minutes ago

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#repost from @mikaelamarierose of her #endotheelephant pin 💛🐘💛

#repost from @mikaelamarierose of her #endotheelephant pin - 21 minutes ago

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#awaernessisbasic #postproduction  #lupuslife #shortfilm to #raiseawareness . #tbt So stay tuned.  #excited #thewolfieproject ...hoping to create #magic #lupusawareness  #lupusdisease #lupuswarrior💜 #lupusisreal  #figthers #chronicpain #chronicillness #realheros , #זאבת #לופוס #העלאתמודעות #הזאבון #מודעות  #מודעותזהבסיסי  #שלישיפעמייםכיטוב  #כאבכרוני #lupusIsrael #tbt #pod  #goals #התחלנו

#awaernessisbasic #postproduction #lupuslife #shortfilm to #raiseawareness . #tbt So stay tuned. #excited #thewolfieproject ...hoping to create #magic #lupusawareness #lupusdisease #lupuswarrior #lupusisreal #figthers #chronicpain #chronicillness #realheros , #זאבת #לופוס #העלאתמודעות #הזאבון #מודעות #מודעותזהבסיסי #שלישיפעמייםכיטוב #כאבכרוני #lupusIsrael #tbt #pod #goals #התחלנו - 22 minutes ago

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💉☕☕Infusionstag ....stell mir vor ist auch Kaffee💪💉☕☕
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#systemischerlupuserythematodes #sle #lupusfighter #spoonie #fucklupus #lupusdeutschland #systemiclupus #lupuswarrior #lupusawareness #autoimmunkrankheiten #autoimmunkrankheit #hope #lupuserythematodes #chronicillness #spoonielife #chronicpain #lupuslife #systemiclupuserythematosus #invisibleillness #lupusfighters #lupusfightersrock #lupussucks #healthyfood #fight #imwinning #imsurviving #imawarrior

Infusionstag ....stell mir vor ist auch Kaffee . . . . . . .. . #systemischerlupuserythematodes #sle #lupusfighter #spoonie #fucklupus #lupusdeutschland #systemiclupus #lupuswarrior #lupusawareness #autoimmunkrankheiten #autoimmunkrankheit #hope #lupuserythematodes #chronicillness #spoonielife #chronicpain #lupuslife #systemiclupuserythematosus #invisibleillness #lupusfighters #lupusfightersrock #lupussucks #healthyfood #fight #imwinning #imsurviving #imawarrior - 24 minutes ago

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Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. 
It attacks all organs, nerve system, muscles, bones, and skin. 
There is no cure, no where. If we get a cold or flu it can kill us sooner.

#SarcoidosisDisease
#ChronicIllness
#InvisibleIllness
#WeAreFightingEverydayToStayAlive
#BlessedEverydayWeAreHere
#WeNeedACure
#Hoping4ACure
#Snowflakes
#sarcoidosisawareness
#caregiver
#LoveonewithSarcoidosisDisease
@charleyblank26

Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. It attacks all organs, nerve system, muscles, bones, and skin. There is no cure, no where. If we get a cold or flu it can kill us sooner. #SarcoidosisDisease #ChronicIllness #InvisibleIllness #WeAreFightingEverydayToStayAlive #BlessedEverydayWeAreHere #WeNeedACure #Hoping4ACure #Snowflakes #sarcoidosisawareness #caregiver #LoveonewithSarcoidosisDisease @charleyblank26 - 30 minutes ago

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Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. 
It attacks all organs, nerve system, muscles, bones, and skin. 
There is no cure, no where. If we get a cold or flu it can kill us sooner.

#SarcoidosisDisease
#ChronicIllness
#InvisibleIllness
#WeAreFightingEverydayToStayAlive
#BlessedEverydayWeAreHere
#WeNeedACure
#Hoping4ACure
#Snowflakes
#sarcoidosisawareness
#caregiver
#LoveonewithSarcoidosisDisease
@charleyblank26

Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. It attacks all organs, nerve system, muscles, bones, and skin. There is no cure, no where. If we get a cold or flu it can kill us sooner. #SarcoidosisDisease #ChronicIllness #InvisibleIllness #WeAreFightingEverydayToStayAlive #BlessedEverydayWeAreHere #WeNeedACure #Hoping4ACure #Snowflakes #sarcoidosisawareness #caregiver #LoveonewithSarcoidosisDisease @charleyblank26 - 30 minutes ago

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Cynthia bracelet 🌙✨ Website coming soon 😌

Cynthia bracelet Website coming soon - 30 minutes ago

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Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. 
It attacks all organs, nerve system, muscles, bones, and skin. 
There is no cure, no where. If we get a cold or flu it can kill us sooner.

#SarcoidosisDisease
#ChronicIllness
#InvisibleIllness
#WeAreFightingEverydayToStayAlive
#BlessedEverydayWeAreHere
#WeNeedACure
#Hoping4ACure
#Snowflakes
#sarcoidosisawareness
#caregiver
#LoveonewithSarcoidosisDisease
@charleyblank26

Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. It attacks all organs, nerve system, muscles, bones, and skin. There is no cure, no where. If we get a cold or flu it can kill us sooner. #SarcoidosisDisease #ChronicIllness #InvisibleIllness #WeAreFightingEverydayToStayAlive #BlessedEverydayWeAreHere #WeNeedACure #Hoping4ACure #Snowflakes #sarcoidosisawareness #caregiver #LoveonewithSarcoidosisDisease @charleyblank26 - 31 minutes ago

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Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. 
It attacks all organs, nerve system, muscles, bones, and skin. 
There is no cure, no where. If we get a cold or flu it can kill us sooner.

#SarcoidosisDisease
#ChronicIllness
#InvisibleIllness
#WeAreFightingEverydayToStayAlive
#BlessedEverydayWeAreHere
#WeNeedACure
#Hoping4ACure
#Snowflakes
#sarcoidosisawareness
#caregiver
#LoveonewithSarcoidosisDisease
@charleyblank26

Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. It attacks all organs, nerve system, muscles, bones, and skin. There is no cure, no where. If we get a cold or flu it can kill us sooner. #SarcoidosisDisease #ChronicIllness #InvisibleIllness #WeAreFightingEverydayToStayAlive #BlessedEverydayWeAreHere #WeNeedACure #Hoping4ACure #Snowflakes #sarcoidosisawareness #caregiver #LoveonewithSarcoidosisDisease @charleyblank26 - 31 minutes ago

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I did not think at 32 years old that I would be having to re-find myself. I already found myself, I thought I knew all there was to know about myself, I was truly happy and I was content, in all aspects of my life... But here we are. 
Throughout this journey, I am learning so much about myself. Some bad but mostly good. I thought I had found true resilience before I got sick but after all that life has previously thrown at me, I now feel stronger than ever. I have now found true resilience and I am now ready for anything 💪🏼👌🏼 *
#fibromyalgia #fibromyalgiasucks #fibromyalgiaawareness #fibromyalgiasupport #fibrofog #fibrofighter #pain #chronicpain #chronicillness #spoonie #spoonielife #chronicmigraine #migraine #atypicalmigraine #migrainewithaura #ibs #chronicfatigue #cfs #exhausted #fatigue #sleep

I did not think at 32 years old that I would be having to re-find myself. I already found myself, I thought I knew all there was to know about myself, I was truly happy and I was content, in all aspects of my life... But here we are. Throughout this journey, I am learning so much about myself. Some bad but mostly good. I thought I had found true resilience before I got sick but after all that life has previously thrown at me, I now feel stronger than ever. I have now found true resilience and I am now ready for anything 🏼🏼 * #fibromyalgia #fibromyalgiasucks #fibromyalgiaawareness #fibromyalgiasupport #fibrofog #fibrofighter #pain #chronicpain #chronicillness #spoonie #spoonielife #chronicmigraine #migraine #atypicalmigraine #migrainewithaura #ibs #chronicfatigue #cfs #exhausted #fatigue #sleep - 31 minutes ago

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Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. 
It attacks all organs, nerve system, muscles, bones, and skin. 
There is no cure, no where. If we get a cold or flu it can kill us sooner.

#SarcoidosisDisease
#ChronicIllness
#InvisibleIllness
#WeAreFightingEverydayToStayAlive
#BlessedEverydayWeAreHere
#WeNeedACure
#Hoping4ACure
#Snowflakes
#sarcoidosisawareness
#caregiver
#LoveonewithSarcoidosisDisease
@charleyblank26

Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. It attacks all organs, nerve system, muscles, bones, and skin. There is no cure, no where. If we get a cold or flu it can kill us sooner. #SarcoidosisDisease #ChronicIllness #InvisibleIllness #WeAreFightingEverydayToStayAlive #BlessedEverydayWeAreHere #WeNeedACure #Hoping4ACure #Snowflakes #sarcoidosisawareness #caregiver #LoveonewithSarcoidosisDisease @charleyblank26 - 32 minutes ago

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Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. 
It attacks all organs, nerve system, muscles, bones, and skin. 
There is no cure, no where. If we get a cold or flu it can kill us sooner.

#SarcoidosisDisease
#ChronicIllness
#InvisibleIllness
#WeAreFightingEverydayToStayAlive
#BlessedEverydayWeAreHere
#WeNeedACure
#Hoping4ACure
#Snowflakes
#sarcoidosisawareness
#caregiver
#LoveonewithSarcoidosisDisease
@charleyblank26

Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. It attacks all organs, nerve system, muscles, bones, and skin. There is no cure, no where. If we get a cold or flu it can kill us sooner. #SarcoidosisDisease #ChronicIllness #InvisibleIllness #WeAreFightingEverydayToStayAlive #BlessedEverydayWeAreHere #WeNeedACure #Hoping4ACure #Snowflakes #sarcoidosisawareness #caregiver #LoveonewithSarcoidosisDisease @charleyblank26 - 32 minutes ago

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🌘🌃GOODNIGHT🌃🌒
💤💙SLEEP TIGHT💙💤 🌌SWEET DREAMS🌌
Sleep is like meditation for me. It's where I let go, where I figure shit out, where I stop all the mind  chatter, where I stop thinking and start being. Sleep is a distraction for the body while the soul is away. I do healing on the spiritual/astral planes in my sleep.🔯🕉❇ #plantbased #plantsaremedicine 
#herbs #herbsaremedicine #healing #chronicillness #sleepismedicine
#sleepismeditation #meditation

🌘GOODNIGHT🌒 SLEEP TIGHT SWEET DREAMS Sleep is like meditation for me. It's where I let go, where I figure shit out, where I stop all the mind chatter, where I stop thinking and start being. Sleep is a distraction for the body while the soul is away. I do healing on the spiritual/astral planes in my sleep.🕉 #plantbased #plantsaremedicine #herbs #herbsaremedicine #healing #chronicillness #sleepismedicine #sleepismeditation #meditation - 32 minutes ago

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Maybe not pulmonary fibrosis after all?  After 10 years of being told your lung issues are due to chemo induced PF, they now say your scans don’t show that much scar tissue.  Maybe it’s a vascular issue instead. #chronicillness  #pulmonaryfibrosis  #oxygendependant #lifewithoxygen #livingwithoxygen

Maybe not pulmonary fibrosis after all? After 10 years of being told your lung issues are due to chemo induced PF, they now say your scans don’t show that much scar tissue. Maybe it’s a vascular issue instead. #chronicillness #pulmonaryfibrosis #oxygendependant #lifewithoxygen #livingwithoxygen - 36 minutes ago

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#valentinesday2018 
#Hearts
https://www.gofundme.com/i-need-a-new-furniture

#SarcoidosisDisease
#ChronicIllness
#InvisibleIllness
#WeAreFightingEverydayToStayAlive
#BlessedEverydayWeAreHere
#WeNeedACure
#Hoping4ACure
#Snowflakes
#sarcoidosisawareness
#caregiver
#LoveonewithSarcoidosisDisease
@charleyblank26

#valentinesday2018 #Hearts https://www.gofundme.com/i-need-a-new-furniture #SarcoidosisDisease #ChronicIllness #InvisibleIllness #WeAreFightingEverydayToStayAlive #BlessedEverydayWeAreHere #WeNeedACure #Hoping4ACure #Snowflakes #sarcoidosisawareness #caregiver #LoveonewithSarcoidosisDisease @charleyblank26 - 38 minutes ago

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I am blessed and grateful to be alive. #littlebitsofthebible #togetherforever #bravery #chronicpain #chronicillness #raredisease #syndrome #mail #positivity #positivemail #invisibleillness #inspirationalquotes #inspiration #nevergiveup #neverquit #spoonies #spooniemail #spooniecommunity #peoplehopetribe

I am blessed and grateful to be alive. #littlebitsofthebible #togetherforever #bravery #chronicpain #chronicillness #raredisease #syndrome #mail #positivity #positivemail #invisibleillness #inspirationalquotes #inspiration #nevergiveup #neverquit #spoonies #spooniemail #spooniecommunity #peoplehopetribe - 38 minutes ago

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Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. 
It attacks all organs, nerve system, muscles, bones, and skin. 
There is no cure, no where. If we get a cold or flu it can kill us sooner.

#SarcoidosisDisease
#ChronicIllness
#InvisibleIllness
#WeAreFightingEverydayToStayAlive
#BlessedEverydayWeAreHere
#WeNeedACure
#Hoping4ACure
#Snowflakes
#sarcoidosisawareness
#caregiver
#LoveonewithSarcoidosisDisease
@charleyblank26

Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. It attacks all organs, nerve system, muscles, bones, and skin. There is no cure, no where. If we get a cold or flu it can kill us sooner. #SarcoidosisDisease #ChronicIllness #InvisibleIllness #WeAreFightingEverydayToStayAlive #BlessedEverydayWeAreHere #WeNeedACure #Hoping4ACure #Snowflakes #sarcoidosisawareness #caregiver #LoveonewithSarcoidosisDisease @charleyblank26 - 40 minutes ago

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0
Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. 
It attacks all organs, nerve system, muscles, bones, and skin. 
There is no cure, no where. If we get a cold or flu it can kill us sooner.

#SarcoidosisDisease
#ChronicIllness
#InvisibleIllness
#WeAreFightingEverydayToStayAlive
#BlessedEverydayWeAreHere
#WeNeedACure
#Hoping4ACure
#Snowflakes
#sarcoidosisawareness
#caregiver
#LoveonewithSarcoidosisDisease
@charleyblank26

Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. It attacks all organs, nerve system, muscles, bones, and skin. There is no cure, no where. If we get a cold or flu it can kill us sooner. #SarcoidosisDisease #ChronicIllness #InvisibleIllness #WeAreFightingEverydayToStayAlive #BlessedEverydayWeAreHere #WeNeedACure #Hoping4ACure #Snowflakes #sarcoidosisawareness #caregiver #LoveonewithSarcoidosisDisease @charleyblank26 - 40 minutes ago

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0
Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. 
It attacks all organs, nerve system, muscles, bones, and skin. 
There is no cure, no where. If we get a cold or flu it can kill us sooner.

#SarcoidosisDisease
#ChronicIllness
#InvisibleIllness
#WeAreFightingEverydayToStayAlive
#BlessedEverydayWeAreHere
#WeNeedACure
#Hoping4ACure
#Snowflakes
#sarcoidosisawareness
#caregiver
#LoveonewithSarcoidosisDisease
@charleyblank26

Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. It attacks all organs, nerve system, muscles, bones, and skin. There is no cure, no where. If we get a cold or flu it can kill us sooner. #SarcoidosisDisease #ChronicIllness #InvisibleIllness #WeAreFightingEverydayToStayAlive #BlessedEverydayWeAreHere #WeNeedACure #Hoping4ACure #Snowflakes #sarcoidosisawareness #caregiver #LoveonewithSarcoidosisDisease @charleyblank26 - 41 minutes ago

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December..., You've always been a problem child, December..., You run me down right restless and wild and I remember when you used to be mine, December...
.
.
#writing #writersofinstagram #writersofig #writer #writerscommunity #poetsofig #art #writersnetwork #poetrycommunity #poetry #poet #poetsofinstagram #artist #artistsoninstagram #quotes #wordporn #photography #life #photographer #love #instagood #instapic #introvert #oneplusphotography #snapseedindia #chronicillness #chronicpain #shotononeplus #asthma #sinusitis

December..., You've always been a problem child, December..., You run me down right restless and wild and I remember when you used to be mine, December... . . #writing #writersofinstagram #writersofig #writer #writerscommunity #poetsofig #art #writersnetwork #poetrycommunity #poetry #poet #poetsofinstagram #artist #artistsoninstagram #quotes #wordporn #photography #life #photographer #love #instagood #instapic #introvert #oneplusphotography #snapseedindia #chronicillness #chronicpain #shotononeplus #asthma #sinusitis - 42 minutes ago

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Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. 
It attacks all organs, nerve system, muscles, bones, and skin. 
There is no cure, no where. If we get a cold or flu it can kill us sooner.

#SarcoidosisDisease
#ChronicIllness
#InvisibleIllness
#WeAreFightingEverydayToStayAlive
#BlessedEverydayWeAreHere
#WeNeedACure
#Hoping4ACure
#Snowflakes
#sarcoidosisawareness
#caregiver
#LoveonewithSarcoidosisDisease
@charleyblank26

Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. It attacks all organs, nerve system, muscles, bones, and skin. There is no cure, no where. If we get a cold or flu it can kill us sooner. #SarcoidosisDisease #ChronicIllness #InvisibleIllness #WeAreFightingEverydayToStayAlive #BlessedEverydayWeAreHere #WeNeedACure #Hoping4ACure #Snowflakes #sarcoidosisawareness #caregiver #LoveonewithSarcoidosisDisease @charleyblank26 - 42 minutes ago

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0
Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. 
It attacks all organs, nerve system, muscles, bones, and skin. 
There is no cure, no where. If we get a cold or flu it can kill us sooner.

#SarcoidosisDisease
#ChronicIllness
#InvisibleIllness
#WeAreFightingEverydayToStayAlive
#BlessedEverydayWeAreHere
#WeNeedACure
#Hoping4ACure
#Snowflakes
#sarcoidosisawareness
#caregiver
#LoveonewithSarcoidosisDisease
@charleyblank26

Sarcoidosis Disease effects over 200,000 people world wide suffering with this illness. It attacks all organs, nerve system, muscles, bones, and skin. There is no cure, no where. If we get a cold or flu it can kill us sooner. #SarcoidosisDisease #ChronicIllness #InvisibleIllness #WeAreFightingEverydayToStayAlive #BlessedEverydayWeAreHere #WeNeedACure #Hoping4ACure #Snowflakes #sarcoidosisawareness #caregiver #LoveonewithSarcoidosisDisease @charleyblank26 - 42 minutes ago

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We rode the Heber Creeper Railroad tonight. We had a huge dance party on board and it was seriously one of my favorite moments of this trip. As the train moved down the tracks, we laughed, talked, sang and then danced. 
Thomas and I danced the swing to some country songs. It was a little tight in the aisle and I was s little bundled. But it was so fun. 
Later we slow danced. My favorite thing on earth is dancing with Thomas. Although I can only make it a song or two these days, it still brings so much joy to my heart. 
What I love most is the way Thomas looks at me when we are dancing, and he is singing every word as if he wrote the lyrics just for me. It brings a smile to my face and insurmountable joy to my heart. I'm reminded over and over why I fell in love with him and continue to adore him. 
Talmage also danced with me and so did my dear son. Each dance was precious to me. I will forever hold those sweet memories close to my heart. 
We also turned up the music and did the YMCA, and other fun songs. Everyone got into it...my Dad, Bonnie, Hayden, JD, Jodi, me and Thomas and most the kids. Seriously one of my very most joyful moments. Tonight was a good one and I'm so grateful I was able to participate. #makingmemories #family #love #joy #fun #eternallove #ilovetodance #ilovemyboys #lds #chronicillness #invisibleillness #chronicpain #ldsmom

We rode the Heber Creeper Railroad tonight. We had a huge dance party on board and it was seriously one of my favorite moments of this trip. As the train moved down the tracks, we laughed, talked, sang and then danced. Thomas and I danced the swing to some country songs. It was a little tight in the aisle and I was s little bundled. But it was so fun. Later we slow danced. My favorite thing on earth is dancing with Thomas. Although I can only make it a song or two these days, it still brings so much joy to my heart. What I love most is the way Thomas looks at me when we are dancing, and he is singing every word as if he wrote the lyrics just for me. It brings a smile to my face and insurmountable joy to my heart. I'm reminded over and over why I fell in love with him and continue to adore him. Talmage also danced with me and so did my dear son. Each dance was precious to me. I will forever hold those sweet memories close to my heart. We also turned up the music and did the YMCA, and other fun songs. Everyone got into it...my Dad, Bonnie, Hayden, JD, Jodi, me and Thomas and most the kids. Seriously one of my very most joyful moments. Tonight was a good one and I'm so grateful I was able to participate. #makingmemories #family #love #joy #fun #eternallove #ilovetodance #ilovemyboys #lds #chronicillness #invisibleillness #chronicpain #ldsmom - 48 minutes ago

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Got some 🔥 on the way! Super excited to try out the #phoenixtears and @gorillashatter shatter! Shout out to @grassinbox for hooking it up! Pictures to come ! 😁😁👀 #weedporn #cannabis #cannabiscommunity #hightimesmagazine #fueledbythc #weshouldsmoke #medicalmarijuana #prop215 #high_larry_us #dabbersdaily #weedculture #weedlife #dabstagram #dablife #wfayo #stankyydankyy #weedpraylove #nobunkjustfunk #thatoceangrown #chronicillness #blowsmoke #potporn #growyourown #clones #clonewars #weedlife #weedpraylove #weedculture #cannabischasers

Got some on the way! Super excited to try out the #phoenixtears and @gorillashatter shatter! Shout out to @grassinbox for hooking it up! Pictures to come ! #weedporn #cannabis #cannabiscommunity #hightimesmagazine #fueledbythc #weshouldsmoke #medicalmarijuana #prop215 #high_larry_us #dabbersdaily #weedculture #weedlife #dabstagram #dablife #wfayo #stankyydankyy #weedpraylove #nobunkjustfunk #thatoceangrown #chronicillness #blowsmoke #potporn #growyourown #clones #clonewars #weedlife #weedpraylove #weedculture #cannabischasers - 50 minutes ago

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March is right around the corner!! February is a short month, so it feels like March just jumps at you!! #lupus #lupuswarrior #lupussupport #lupussupportgroup #chronicillness #chronicillnesssupport #spoonie #spooniesupport #sacramento #sactown #916 #saclupussupportgroup

March is right around the corner!! February is a short month, so it feels like March just jumps at you!! #lupus #lupuswarrior #lupussupport #lupussupportgroup #chronicillness #chronicillnesssupport #spoonie #spooniesupport #sacramento #sactown #916 #saclupussupportgroup - 52 minutes ago

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March is right around the corner!! February is a short month, so it feels like March just jumps at you!! #lupus #lupuswarrior #lupussupport #lupussupportgroup #chronicillness #chronicillnesssupport #spoonie #spooniesupport #sacramento #sactown #916 #saclupussupportgroup

March is right around the corner!! February is a short month, so it feels like March just jumps at you!! #lupus #lupuswarrior #lupussupport #lupussupportgroup #chronicillness #chronicillnesssupport #spoonie #spooniesupport #sacramento #sactown #916 #saclupussupportgroup - 52 minutes ago

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☝🏼With ongoing sleep deprivation linked to the increased risk of heart disease, diabetes, stroke and many more chronic illnesses, it is SO important to prioritise your sleep.
⠀⠀⠀⠀⠀⠀⠀⠀⠀
💭Try out these tips next time you’re struggling to fall asleep
⠀⠀⠀⠀⠀⠀⠀⠀⠀
😴 Keep your sleep/wake schedule consistent
😴 Listen to meditation apps while falling asleep - there’s plenty of free ones available on your smart phones App Store
😴 Avoid doing stimulating, frustrating or anxiety inducing activities in bed or in your bedroom such as watching tv, studying or using social media

🏼With ongoing sleep deprivation linked to the increased risk of heart disease, diabetes, stroke and many more chronic illnesses, it is SO important to prioritise your sleep. ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 💭Try out these tips next time you’re struggling to fall asleep ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 😴 Keep your sleep/wake schedule consistent 😴 Listen to meditation apps while falling asleep - there’s plenty of free ones available on your smart phones App Store 😴 Avoid doing stimulating, frustrating or anxiety inducing activities in bed or in your bedroom such as watching tv, studying or using social media - 53 minutes ago

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3 cute kids and one of them are mine.  @essentiallyramblin is my beautiful daughter who has introduced me to the wonderful world of Young Living oils.  Thank you baby!
Right now I'm Diffusing lavender, copeiba and stressaway ... .. Relaxing. 😊😯😳🌱🌾🌼🌺
#fibromyalgia #fibro #chronicillness #chronicpain #chronicfatigue #cancer #survivor #warrior #youngliving #younglivingeo #ylessentialoils #keepliving #daughter #sidekick

3 cute kids and one of them are mine. @essentiallyramblin is my beautiful daughter who has introduced me to the wonderful world of Young Living oils. Thank you baby! Right now I'm Diffusing lavender, copeiba and stressaway ... .. Relaxing. 😯 #fibromyalgia #fibro #chronicillness #chronicpain #chronicfatigue #cancer #survivor #warrior #youngliving #younglivingeo #ylessentialoils #keepliving #daughter #sidekick - 55 minutes ago

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🆕START YOUR OWN BUSINESS FREE!!!
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#healthebody #healthychoice #healthynothigh #painmanagement #cbd #cbdoil #cannabiscommunity #wellness #healthiswealth #prevention #healedbyhemp #cannabidiol #cannabinoids #alternativemedicine #inflammation #healthyliving #healthylife #cbdheals #antioxidants #allnatural #healthscience #healthy #health #healthconscious #illness #chronicillness #chronicpain #survivor #workathome #workfromhome

START YOUR OWN BUSINESS FREE!!! https://cbdoilproducts.online - 100% Commissions Paid Out Weekly - FREE Personalized Websites 😀- 100% Free To Join - Hybrid Plan so EVERYONE wins #healthebody #healthychoice #healthynothigh #painmanagement #cbd #cbdoil #cannabiscommunity #wellness #healthiswealth #prevention #healedbyhemp #cannabidiol #cannabinoids #alternativemedicine #inflammation #healthyliving #healthylife #cbdheals #antioxidants #allnatural #healthscience #healthy #health #healthconscious #illness #chronicillness #chronicpain #survivor #workathome #workfromhome - 57 minutes ago

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I’ve been asked about this so here I go!!💙🦋💙So guys I’ve always struggled with my hair falling and braking apart but a few months ago someone told me about this @sugarbearhair vitamins, eventhough I have #gastroparesis this candy 🍭 tasty vitamins gave me not only my hair back but I can digest them😱😱😱 yes! Only 1 a day it’s all that gets through my mouth, but it’s a joy of flavor if you are looking for something like this they have lots of benefits and they are definetly worth it! Hope this tip helps someone 💜 🐻 
#sugarbearhair #hairvitamins #vitamins #chronicillness #spoonielife #spoonie #improveyourhealth #improveyourlife #hair #loveit #zebra #warrior #tip #chronicilnesstip

I’ve been asked about this so here I go!!🦋So guys I’ve always struggled with my hair falling and braking apart but a few months ago someone told me about this @sugarbearhair vitamins, eventhough I have #gastroparesis this candy tasty vitamins gave me not only my hair back but I can digest them yes! Only 1 a day it’s all that gets through my mouth, but it’s a joy of flavor if you are looking for something like this they have lots of benefits and they are definetly worth it! Hope this tip helps someone #sugarbearhair #hairvitamins #vitamins #chronicillness #spoonielife #spoonie #improveyourhealth #improveyourlife #hair #loveit #zebra #warrior #tip #chronicilnesstip - 59 minutes ago

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😊 🙌🏼 ❤️

🏼 ️ - 59 minutes ago

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Disregard my post about eating some solids some time back. It was jumping the gun. I had an initial ‘dumping’ phase that tricked me into thinking I have gut motility. So it’s mostly still liquids for me, I sneak the occasional bite of something off someone else’s plate only to then have to spend my day ‘flushing’ with osmolax. 😂 #thejoys

Disregard my post about eating some solids some time back. It was jumping the gun. I had an initial ‘dumping’ phase that tricked me into thinking I have gut motility. So it’s mostly still liquids for me, I sneak the occasional bite of something off someone else’s plate only to then have to spend my day ‘flushing’ with osmolax. #thejoys - 1 hour ago

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So it's been a crappy flare day. I don't speak much about my husband because he's not big on social media...but today he bought me this beautiful gold, silver and diamond ring. To brighten my day. I love it!!! Thank you Osman.  Lupus sucks...being stuck on a couch is crappy. Tomorrow gonna go see my rheumatologist in hopes he can fix me. I did get out for a bit. To find my daughter a dress for her county performance. It was painful...thank you JC Penny for having carts. I may have looked old leaning on it...but it helped to get me through finding her dress. Sad but I so could have used my nanas walker and it would have brought me great relief all day. Sucks to say this...only being 36....but this is my life with lupus. Gotta do...whatever I have to do to push forward. #lupusisunfair #lupuswarrior #invisableillness #chronicillness #pushingthroughthepain #giftsaregreat #lupus #downfornowbutnotforlong #fightingmyillness #nevergivingup #strongerthenlupus #weneedacure #tired #ithurts #hopingforacureoneday #hopingforabettertomorrow #allcriedout #mylifewithlupus #strongerthenmyillness

So it's been a crappy flare day. I don't speak much about my husband because he's not big on social media...but today he bought me this beautiful gold, silver and diamond ring. To brighten my day. I love it!!! Thank you Osman. Lupus sucks...being stuck on a couch is crappy. Tomorrow gonna go see my rheumatologist in hopes he can fix me. I did get out for a bit. To find my daughter a dress for her county performance. It was painful...thank you JC Penny for having carts. I may have looked old leaning on it...but it helped to get me through finding her dress. Sad but I so could have used my nanas walker and it would have brought me great relief all day. Sucks to say this...only being 36....but this is my life with lupus. Gotta do...whatever I have to do to push forward. #lupusisunfair #lupuswarrior #invisableillness #chronicillness #pushingthroughthepain #giftsaregreat #lupus #downfornowbutnotforlong #fightingmyillness #nevergivingup #strongerthenlupus #weneedacure #tired #ithurts #hopingforacureoneday #hopingforabettertomorrow #allcriedout #mylifewithlupus #strongerthenmyillness - 1 hour ago

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The day is finally here! I hope all goes smoothly today and the surgeons do the best they possibly can for me. 
Im being completely positive this morning and that’s the truth! I slept reasonably well and woke at 05.20am. I slept in our spare room last night as I I didn’t want to disturb Sam with constantly going to the loo so I had lovely snuggles with Albert in bed which was just wonderful. He’s the best little spoon! I’ve had a lovely hot bath with my essential oils and also put them on my temple points which smell divine! Holding on to my opalite heart crystal my mama got my many years ago. I’ve taken it to my previous surgeries and don’t let go of it until I’m in the theatre room. Got my lovely t shirt from @cosmiclotus.co on. Bare faced no jewellery (which took me longer than I care to admit to remove truth be told ask have many piercings) setting off at 7am as to be at the hospital for 7.30am. This is it guys I’m so ready!!! Please keep me in your thoughts today 💛

#endometriosis #endometriosissurgery #endometriosisawareness #endometriosiswarrior #pain #chronicpain #chronicillness #letsdothis #positivevibes

The day is finally here! I hope all goes smoothly today and the surgeons do the best they possibly can for me. Im being completely positive this morning and that’s the truth! I slept reasonably well and woke at 05.20am. I slept in our spare room last night as I I didn’t want to disturb Sam with constantly going to the loo so I had lovely snuggles with Albert in bed which was just wonderful. He’s the best little spoon! I’ve had a lovely hot bath with my essential oils and also put them on my temple points which smell divine! Holding on to my opalite heart crystal my mama got my many years ago. I’ve taken it to my previous surgeries and don’t let go of it until I’m in the theatre room. Got my lovely t shirt from @cosmiclotus.co on. Bare faced no jewellery (which took me longer than I care to admit to remove truth be told ask have many piercings) setting off at 7am as to be at the hospital for 7.30am. This is it guys I’m so ready!!! Please keep me in your thoughts today #endometriosis #endometriosissurgery #endometriosisawareness #endometriosiswarrior #pain #chronicpain #chronicillness #letsdothis #positivevibes - 1 hour ago

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Catchphrase! 💙

#Repost @strongerthanpots (@get_repost)
・・・
If strangers give you advice face to face, ask them this question 😉

#haveyoutriedyoga #hyty #chronicpain #chronicillness #invisibleillness #spoonies #eds #ic

Catchphrase! #Repost @strongerthanpots (@get_repost ) ・・・ If strangers give you advice face to face, ask them this question #haveyoutriedyoga #hyty #chronicpain #chronicillness #invisibleillness #spoonies #eds #ic - 1 hour ago

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Go check out the awesome #medicated goodies @dab_downunder is pumping, and get yourself in the running to win a few of #auntytracyscookies 😉👌 #Australiancannabiscommunity #dankofaus #aussiegreenery #realmedicine #australiancannabis #legalizemymedicine #chronicillness #painrelief #aussiestoners #420Australia #aussiecannabiscommunity

Go check out the awesome #medicated goodies @dab_downunder is pumping, and get yourself in the running to win a few of #auntytracyscookies #Australiancannabiscommunity #dankofaus #aussiegreenery #realmedicine #australiancannabis #legalizemymedicine #chronicillness #painrelief #aussiestoners #420Australia #aussiecannabiscommunity - 1 hour ago

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💉 Today’s IVIG treatment day. 💉 2 hour pre LR infusion, 3 1/2 hour Ig infusion & 4 1/2 hour post LR Infusion. Still finishing up my post LR’s at the moment.  I’ve had reactions at the end of my Ig Infusions the past few weeks so we’ve slowed my rate down the last couple times.  Today’s rate seemed to work great with no reaction! 😊👍🏼 These are long & exhausting days each week but it’s worth every moment to help prevent me from getting as many frequent infections as easily, help to relieve joint pain & hydrate me to feel better starting off a new week with my body a bit more stable & so much more. ❤️ #lifeofnessleigh

Today’s IVIG treatment day. 2 hour pre LR infusion, 3 1/2 hour Ig infusion & 4 1/2 hour post LR Infusion. Still finishing up my post LR’s at the moment. I’ve had reactions at the end of my Ig Infusions the past few weeks so we’ve slowed my rate down the last couple times. Today’s rate seemed to work great with no reaction! 🏼 These are long & exhausting days each week but it’s worth every moment to help prevent me from getting as many frequent infections as easily, help to relieve joint pain & hydrate me to feel better starting off a new week with my body a bit more stable & so much more. #lifeofnessleigh - 1 hour ago

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Several things! Early finish today = @sukhalife treat myself. Mental note: next time just order the smoothie OR the burger. I couldn’t finish either 😂 so tasty though. I also had no idea what the cals in the smoothie or burger itself would be so calories are a bit of a guesstimate today 🤷‍♀️
Also went for another (slower) swim today. Ouch. My everything hurts. And by everything I particularly mean my arms. Rachael was off a night shift so Tim joined me by himself which was nice. Definitely goes faster with a friend (even when he’s blatantly lapping you repeatedly). I’m also deeply offended that @myfitnesspal registers my swim as a “light/moderate” effort 😂 I’ll have you know I’m damn near killing myself ;) the Apple Watch was equally offensive as it decided my freestyle was breast stroke 😂
Aaaand finally... tackling those stairs after the swim is a workout in itself 😐had to take a picture of my victorious climb since it’s up there with Lofty as far as I’m concerned 😂
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#rawarrior #rheumatoidarthritis #arthritis #arthritisaustralia #fitness #fitfam #healthylifestyle #wellbeing #weightloss #weightlossjourney #weightlossblogger #chronicillness #chronicpain #fitnessmotivation #curearthritis #adelaideblogger

Several things! Early finish today = @sukhalife treat myself. Mental note: next time just order the smoothie OR the burger. I couldn’t finish either so tasty though. I also had no idea what the cals in the smoothie or burger itself would be so calories are a bit of a guesstimate today 🤷‍♀️ Also went for another (slower) swim today. Ouch. My everything hurts. And by everything I particularly mean my arms. Rachael was off a night shift so Tim joined me by himself which was nice. Definitely goes faster with a friend (even when he’s blatantly lapping you repeatedly). I’m also deeply offended that @myfitnesspal registers my swim as a “light/moderate” effort I’ll have you know I’m damn near killing myself ;) the Apple Watch was equally offensive as it decided my freestyle was breast stroke Aaaand finally... tackling those stairs after the swim is a workout in itself 😐had to take a picture of my victorious climb since it’s up there with Lofty as far as I’m concerned • • • • • #rawarrior #rheumatoidarthritis #arthritis #arthritisaustralia #fitness #fitfam #healthylifestyle #wellbeing #weightloss #weightlossjourney #weightlossblogger #chronicillness #chronicpain #fitnessmotivation #curearthritis #adelaideblogger - 1 hour ago

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I despise these days of fever sleep & suffering.
I am lost in a void of desire to create - bound bodily by bindings unseen.
I thought this was just a memory burned
deep into the recesses of my rotted mind.
just the gentlest breath of air against my cheek sends 
shattered glass shards down my skin
a lover’s hand is a branding iron sweeping against my breasts. 
And if you could hear the suffering I endure
in the night 
alone 
silent 
and if you could feel it
you would never sleep again. 
flameless fires burn
from the very tip of of the tendrils of every hair
along every inch of aching flesh
and down each and every fragile toe
and I wonder how do I stand upon them ever again? .
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.
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.
.
.
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#blackandwhitephotography #poem #poemandphoto #photoandpoem #painsomnia #chroniclife #chronicillness #chronicpain #artistoninstagram #artistsoninstagram

I despise these days of fever sleep & suffering. I am lost in a void of desire to create - bound bodily by bindings unseen. I thought this was just a memory burned deep into the recesses of my rotted mind. just the gentlest breath of air against my cheek sends shattered glass shards down my skin a lover’s hand is a branding iron sweeping against my breasts. And if you could hear the suffering I endure in the night alone silent and if you could feel it you would never sleep again. flameless fires burn from the very tip of of the tendrils of every hair along every inch of aching flesh and down each and every fragile toe and I wonder how do I stand upon them ever again? . . . . . . . . . #blackandwhitephotography #poem #poemandphoto #photoandpoem #painsomnia #chroniclife #chronicillness #chronicpain #artistoninstagram #artistsoninstagram - 1 hour ago

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**What is the Emmett Technique!? (Part 6)***
.
An internationally recognised and practiced remedial therapy.
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Originally founded in Australia🇦🇺 , the Emmett Technique has been taught in over 26 counties. We now have qualified practitioners in 15 countries spanning 5 continents.
.
Luckily, you can find us in Norwood, SA 😅.
.
Book in for a session this week and start feeling better, sooner.

**What is the Emmett Technique!? (Part 6)*** . An internationally recognised and practiced remedial therapy. . Originally founded in Australia🇦🇺 , the Emmett Technique has been taught in over 26 counties. We now have qualified practitioners in 15 countries spanning 5 continents. . Luckily, you can find us in Norwood, SA . . Book in for a session this week and start feeling better, sooner. - 1 hour ago

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❤️❤️❤️

️ - 1 day ago

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