When I think back on my life, back when I lived with #sicklecell disease, I remember my first day of kindergarten — closing my eyes to check if I was feeling pain anywhere in my body. I didn’t. I felt completely normal. That would be the last time I would feel normal for a long time.
In high school, every morning started with turning off my alarm, rolling over and taking a cocktail of pills: hydroxyurea, penicillin and oxycodone. To get through my school day, I had to take painkillers to manage my pain. The pain was like slamming your finger in a door: the initial sharp pain, followed by a dull ache. The dull ache was my daily life. The sharp pain was a pain crisis.
One night while eating dinner with my family, my dad said, “Your doctor told me about a doctor in Pittsburg who is curing people with sickle cell disease. I want you to have a transplant.” I didn’t know what a transplant was. I was 16 years old and looking forward to graduation and applying to colleges. I had my life to live and didn’t want to interrupt my plans for a transplant.
Read more here (link in bio): https://bit.ly/2JUC64N
#repostforsicklecell #BeTheMatch #bonemarrowtransplant #sicklecell101 #worldsicklecellday - 5 hours ago